1.1.R.95 Recognised medical condition (CA)

Definition

For the purposes of CA (child), a recognised medical condition is one of a category of recognised disabilities (1.1.R.90) as included in the DCLAD. These conditions:

  • consistently require medical treatment and supervision for a continuous period of at least 12 months, AND
  • result in significant restriction to the child's normal activities, AND
    • Example: Repeated hospitalisation, absences from school, risk of injury at play.
  • require significant levels of personal care by the parent/carer.

Medical conditions

The following medical conditions do not have to be tested against the DCLA:

  • Chronic or end stage organ failure where the child is receiving organ specific treatment and/or awaiting transplant.
    • Note: This condition applies to those cases where life will not continue without a transplant of the failed organ (or organs).
    • Example: Kidney failure, heart failure, heart/lung failure, liver failure.
  • HIV/AIDS where the child is symptomatic (in addition to having lymphadenopathy) and requires treatment with a 3 or more drug antiviral regimen.
  • Immunodeficiency where the child requires regular immunoglobin infusions.
  • Chronic respiratory disease requiring home oxygen.
  • A condition where the child is dependent for his or her health on an external apparatus/machine called a ventilator to assist with breathing, either on a continuous or intermittent basis.
  • Long term tracheostomy where the child is cared for at home.
  • Leukaemia, Haemophagocytic Lymphohistiocytosis and other childhood malignancies where the child is undergoing chemotherapy, radiotherapy or palliative care.
  • Haemophilia with Factor VIII or Factor IX deficiency (less than 10%).
  • Thalassaemia or Haemoglobinopathy requiring chelation therapy.
  • Chronic Transfusion Dependent Anaemia requiring chelation therapy.
  • Langerhorn Cell Histiocytosis: disseminated (multi-organ) disease requiring chemotherapy for longer than 6 months.
  • Severe congenital Neutropenia (Kostman's variant, dependent on Filgrastin).
  • Severe atopic dermatitis which involves at least 75% of the body surface and which has required 2 or more hospitalisations of at least 5 days duration in the previous calendar year, and/or the use of immunosuppressive therapy.
  • Significant burn where more than 30% of body surface area is affected, or a lesser burn where there is significant impairment of function of the hands or feet or assistance is required with feeding or toileting to a greater degree than is age appropriate for the child.
  • Gastroenterological condition or other medical condition requiring total parenteral nutrition for an extended period, with medical treatment and medical supervision required for at least 12 months.
  • Final stage of Ulcerative Colitis where the condition is no longer responding to medical treatment and where a sub-total colectomy and ileo-rectal anastomosis with formation of a J-pouch is required.
  • Polyarticular course Juvenile Arthritis requiring regular multi-disciplinary therapy, including immunosuppressive medication.
  • Diabetes Mellitus Type 1.

Act reference: SSAct section 953 Qualification for CA-caring for either 1 or 2 disabled children

Policy reference: SS Guide 3.6.7.30 Qualification for CA

Last reviewed: 11 May 2015