1.1.R.95 Recognised medical condition (CA)
- consistently require medical treatment and supervision for a continuous period of at least 12 months, AND
- result in significant restriction to the child's normal activities, AND
Example: Repeated hospitalisation, absences from school, risk of injury at play.
- require significant levels of personal care by the parent/carer.
The following medical conditions do not have to be tested against the DCLA:
- Chronic or end stage organ failure where the child is receiving organ specific treatment and/or awaiting transplant.
- Note: This condition applies to those cases where life will not continue without a transplant of the failed organ (or organs).
Example: Kidney failure, heart failure, heart/lung failure, liver failure.
- HIV/AIDS where the child is symptomatic (in addition to having lymphadenopathy) and requires treatment with a 3 or more drug antiviral regimen.
- Immunodeficiency where the child requires regular immunoglobin infusions.
- Chronic respiratory disease requiring home oxygen.
- A condition where the child is dependent for his or her health on an external apparatus/machine called a ventilator to assist with breathing, either on a continuous or intermittent basis.
- Long term tracheostomy where the child is cared for at home.
- Leukaemia, Haemophagocytic Lymphohistiocytosis and other childhood malignancies where the child is undergoing chemotherapy, radiotherapy or palliative care.
- Haemophilia with Factor VIII or Factor IX deficiency (less than 10%).
- Thalassaemia or Haemoglobinopathy requiring chelation therapy.
- Chronic Transfusion Dependent Anaemia requiring chelation therapy.
- Langerhorn Cell Histiocytosis: disseminated (multi-organ) disease requiring chemotherapy for longer than 6 months.
- Severe congenital Neutropenia (Kostman's variant, dependent on Filgrastin).
- Severe atopic dermatitis which involves at least 75% of the body surface and which has required 2 or more hospitalisations of at least 5 days duration in the previous calendar year, and/or the use of immunosuppressive therapy.
- Significant burn where more than 30% of body surface area is affected, or a lesser burn where there is significant impairment of function of the hands or feet or assistance is required with feeding or toileting to a greater degree than is age appropriate for the child.
- Gastroenterological condition or other medical condition requiring total parenteral nutrition for an extended period, with medical treatment and medical supervision required for at least 12 months.
- Final stage of Ulcerative Colitis where the condition is no longer responding to medical treatment and where a sub-total colectomy and ileo-rectal anastomosis with formation of a J-pouch is required.
- Polyarticular course Juvenile Arthritis requiring regular multi-disciplinary therapy, including immunosuppressive medication.
- Diabetes Mellitus Type 1.